RARE News

NephCure celebrates second annual APOL1 Kidney Disease Awareness Day on April 29, 2025

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23 April 2025

RARE News

Global nonprofit CureDuchenne to host FUTURES National Conference for the Duchenne and Becker muscular dystrophy community

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23 April 2025

RARE News

Save the date: 1st International Clinical Care Symposium on spinal muscular atrophy.

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23 April 2025

RARE News

Join as a trustee and help transform the future for children with Schinzel-Giedion syndrome

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3 April 2025

RARE News

CureDuchenne and Children’s Hospital of Orange County partner to bring world-class care to families with Duchenne muscular dystrophy

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7 March 2025

RARE News

Unlock the future of pharma marketing: the 8th Annual Pharma Omnichannel Excellence Conference

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5 March 2025

RARE News

Exposing the gaps in screening and care for hereditary brain aneurysms

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3 March 2025

RARE News

SMA Europe announces the awardees and projects shortlisted through its call for research no.12

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28 February 2025

RARE News

RARE DISEASE DAY 2025: Artistic expressions bring to life realities of rare conditions

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27 February 2025

Turning the tide for rare disease

A personal and professional drive to advance research for rare disease

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24 February 2025

RARE News

ED Society calls for support amid financial struggles to secure sponsorship for key conference

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17 February 2025

Rare insights

New groups extend support for carers of people living with rare brain disease

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17 February 2025

RARE News

Cure HSPB8: a new patient advocacy group for people living with HSPB8 myopathy

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17 February 2025

Charity & advocacy

Immunocompromised Association kicks off 2025 with safety and fun, with its inaugural virtual New Year’s Eve ball drop+

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14 February 2025

RARE News

The healing power of play: how starlight delivers happiness to kids living with rare diseases

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12 February 2025

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

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6 February 2025

RARE News

Neuro-orthoptics in progressive supranuclear palsy

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1 February 2025