Subscribe Now

By entering these details you are signing up to receive our newsletter.

Rare insights

National charity expands helpline support in Wales

By Becky Pender
17 April 2025

Patient voice

The invisible part of me: living with PBC

By Becky Pender
25 February 2025

Turning the tide for rare disease

Rare disease champions: how Cycle Pharmaceuticals and their partner Inceptua are redefining pharmaceutical philanthropy and opening up access to novel therapies in low and middle-income regions

By Becky Pender
15 January 2025

RARE caregiving

Challenges of caring for a rare disease patient—a discussion

By Becky Pender
20 November 2024

RARE News

International Gaucher Alliance celebrates 30 years of international patient advocacy

By Becky Pender
23 September 2024
Skip to content